A Chance for A Smile

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A Chance for A Smile

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I am a 43 yr old single parent(mom)that has Common Variable Immunodeficiency. This is a genetic immune deficiency and my body is unable to make the immunities it needs to keep it healthy. In the past I have had pneumonia, hepatitis, tuberculosis, etc. The only way for me to stay alive and healthy is to infuse an immune system into my body once a week using special drugs-it's not comfortable and I still don't like sticking needles into myself, but I thank God I have this option so that I can take care of my children.

My five year old son is also immune deficient, but not as severely as me - although he does get sick frequently and has allergies. He's got a smile that lights up a room and a heart full of love and compassion well beyond his years. My 11 year old son is Asperger's Autistic with ADHD and Anxiety Disorder. He is years ahead academically and has the purest, kindest heart I have seen. Due to the Asperger's, he lacks the ability to form and keep relationships-he does not have one friend-not one person to call on the phone or spend time with after school. Because of his academic abilities he attends regular school where he is bullied verbally and physically - feeling alone and like he doesn't belong. His school district will not give him the services he needs to help him. His anxiety has gotten so great, he needs sleeping pills to sleep at night. I have asked his school district to place him in a special school with children like himself where he will be taught the skills he needs and they have refused. Finally, feeling I had no other choice, I hired an attorney - which was difficult financially as our medical bills are high. His case is still being reviewed and I'm not sure where I'll get the rest of the money for that. I've also been recently laid off from my job. It just seems to have been a long time of stress and sadness.

I know my older son would love a chance to swim with dolphins (because he loves all animals-he knows they don't judge him). I know both boys would love the opportunity to go to Disney World. I would love to be able to see my sons have something to make their hearts happy and full and to allow them to feel special - if just for a few days.

Thank you for taking the time to read my story. May God Bless You and all of the families with stories.

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Comments

Submitted on 5/26/2006 by Carol
This story is close to my own heart. I, too, am a single mother of 5. I have a son with Aspergers as well and I know the difficulty in dealing with him and lack of friendships. I understand this mothers plight and would vote for her to receive a vacation to calm her silent cry for help.

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